How do you want to be remembered?

In my youth…

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but you wondered, didn’t you?

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I watched Piers Morgan last night on CNN covering the death of Elizabeth Taylor. Yes, she was gorgeous. Yes, she was an icon. Yes, she had 8 husbands, was bold and bawdy and may well be our last “movie star.”

What I also noticed, beside the talkingcelebrity tributes, was at each commercial break they showed tweets from Elizabeth’s celebrity friends memorializing her. 

Elton John, James Earl Jones, Liza Minelli, Angela Lansbury, Dick Cavett, Larry King, Kirstie Alley, Michael Caine, Steve Martin. They were all tweeting what you might call tiny little obituaries. Really, what you’d want your friends to say about you when you die. Like, “She taught me a lot about suffering and joy.” “She had a wicked sense of humor I loved.” “She was passionate about everything and did so much good for the world.”

It’s long been a life-coach exercise to have people write their own obituary to think what they’d like to be remembered for, and then create that life. Somehow seeing it as 140 or less word tweets makes it seem so much more doable. 

So I’m thinking maybe we should all write a few tweets about ourselves that we’d like people to use after we’re gone – and then go about creating that life now. 

When I die I’d like people to tweet (of course I realize by then tweeting will have been replaced by something else, but I’ll use it for now):

“She made me think about my life and helped me make it better. And god she was funny!!!.”

Your turn. 

Today is Diabetes Alert day: Learn your risk for having type 2 diabetes

Today marks the American Diabetes Association’s annual effort to get everyone to test whether they’re at risk for diabetes. 

You know the numbers, or maybe you don’t. They’ve escalated tremendously in just a year! 

26 million people have diabetes, among them 23 million have type 2. 25-35% of those people don’t know they have diabetes. And almost a whopping 79 million people havepre-diabetes!  

Since doctors don’t prescribe medication or much in the way of lifestyle change for pre-diabetes, if you have it chances are high within 5 to 10 years you’ll have type 2 diabetes. So knowing if you have pre-diabetes is just as important as knowing if you have diabetes. 

Risk factors for pre-diabetes/type 2 diabetes:  

People in your family have type 2 diabetes

You’re over 45 years old

You belong to a high-risk ethnic group: African American, Native American, Latino, Pacific Islanders

You’re overweight and don’t move much

You have high blood pressure

You had diabetes while pregnant or delivered a baby weighing more than 9 pounds

Now take the diabetes risk testThe Test asks you simple questions about your weight, age, family history, like above, and other potential risks for type 2 diabetes and prediabetes. You’ll learn whether you are at low, moderate or high risk for type 2 diabetes.

Diabetes Alert Day lasts a month: It runs through April 22 during which time the ADA will be rallying one million people to take the Test. Be among them.

Seriously, you could be walking around with diabetes and not know it like millions of people. 

If that’s true for you, by time you’re officially diagnosed, years from now, you may be among the 25% who have complications upon diagnosis because they had diabetes for years and didn’t know it so didn’t take care of it. 

Trust me, if you can avoid that, do. Take the test, it’s a very small price to pay for a very large gift – knowing whether or not you have diabetes now.

Diabetes transforms Katie Decker

Katie Decker shares her wisdom 

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Transforming management through recreation

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 I just listened to a great podcast on “Transforming Diabetes” where type 1 patient and health counselor Katie Decker has some great stuff to say. 

Mature beyond her years, Katie’s been living with diabetes and celiac disease for 7 years. She’s made several changes in her life since her diagnosis: she went back to school for health counseling, while still working as an architect, she moved from Los Angeles to Portland, she has grown closer to her family, and diabetes has changed her, her values and how she lives. 

Katie is calm, clear, centered and shares her thoughts about living with diabetes from a productive, constructive, energizing place; a place where we also have a responsibility to strive for our best, maintain balance and ask for support.  

Katie also made me aware of an intriguing organization,InsulinDependence (ID), that is attempting to revolutionize diabetes management by building self-confidence and adaptive management strategies in young people through adventure travel and recreation. The organization also offers leadership training, community and more. ID has an interesting history, an outgrowth of  an experiential diabetes education expedition Peter Nerothin took type 1 youths on in the mountains of Peru in 2005.  

I also like Katie’s idea that we all live on what she calls “primary” and “secondary foods.” Primary foods are those that nourish our spirit like: friends, family, mindfulness, work and hobbies we love. For Katie it’s her love of art. Secondary foods are those we put on our plate. What’s key is when our primary foods aren’t nourishing us we tend to make poor choices in our secondary foods. No doubt in my book.

Tune in to Katie’s interview. So much good information from this young old soul.

DiabetesMine “Design Challenge” open for submissions

My friend, design- and politico-advocate, Amy Tenderich, over atDiabetesMine is once again inviting all your great ideas for new and improved designs for diabetes tools and technologies. It’s the third annual DiabetesMine Design Challenge. 

Do you have an idea for an innovative new diabetes device or web application? The DiabetesMine™ Design Challenge is your chance to win big, and potentially help transform life with diabetes for millions of people.

Whether you’re a patient, parent, caregiver, student, entrepreneur, developer, engineer, etc.:  if you’ve got a great idea for a new tool to improve live with diabetes, send your submission!”

This year there will be three Grand Prizes of $7,000 plus a consultation with IDEO, a complimentary pass to this fall’s Health 2.0 conference, and expert help as appropriate. 

The contest is open for submissions until Friday, April 29. Check it out. Allison Blass tells me there’s a brand new video for this year’s contest. 

Nice to see also that my fellow blogger, Bernard Farrell, will be one of the many impressive judges. Bernard has been a passionate commentator on all things regarding diabetes technologies. 

 

Transforming diabetes from pain into purpose

Internist Jeff Horacek

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Wellness coach Heather Clute

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I’ve had a hellish cold and cough these past few weeks and so little energy to post. So I thought this is a good opportunity to make you aware of something sitting quietly on my ‘Press page.’

I was invited back to the radio show,Transforming Diabetes to talk about some simple tools to help you flourish with diabetes. In other words, help you improve your management and create a life with diabetes that’s healthy, happy, productive and meaningful. 

Hosts M.D. Jeff Horacek and wellness counselor, Heather Clute, honored me as their first repeat guest – probably because we got so gabby on the first show there was still much to talk about. That included steps to living from a more flourishing place.

Dr. Horacek is an animal of a different stripe. He’s one of the most open, caring, active listening physicians I’ve had the pleasure to talk with. His deep concern for learning from, and helping, patients puts him in a class of his own.

Heather, who has had type 1 diabetes almost 15 years, and has an old soul to boot with a specialty in mindfulness, authentically understands the every day ups and downs of living with diabetes.

Check out the blog post and listen to the podcast. It’s a great way to rev up your energy and shift your outlook for the better in just 30 minutes. Then tool around the site and have a listen to any number of podcasts that may interest you. I’m in some very good company.

Your true love with diabetes

A love story that gets better with time

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When I got engaged at the ripe old age of 47 in the year 2000, I said to my husband-to-be, who knew I had diabetes but more in the figurative sense than actually seeing it close-up and on the ground, “If you want to rethink this, I won’t hold it against you. I don’t know what’s in store for my future and I would never want to be a burden to you.” 

He wrapped his arms around me, just as I’d hoped, and said, “You’re with me now and I’m with you and we will do this together.” 

And we have. He’s my partner in life and in my diabetes and at times in my work. He’s prouder of me than anyone has a right to be and I don’t know where I’d be without him. 

I’m reminded of that early moment in our history because in the current American Diabetes Association’s Forecast magazine, March 2011, the reflection column brought it all back. “A Life Together” expresses very much the same sentiments of a husband who married a woman with type 1 diabetes and took it on. And that was back in 1951. He’s now 80 and they’ve been married 57 years. She is blessedly complication-free, and yes she’s worked at it, and he says “our love is far stronger today than it was when we got married.”

Remember, when they got married meters didn’t exist, which came out in the early 1980’s, no insulin pumps, and a guaranteed uncertain future.

But here’s to love! I found myself tearing up reading the article and want to thank the author, Myron Schultz, for drawing such a beautifully woven and warm wrap around us all while baring his soul. May a thousand mitzvahs land on your doorstep Myron.

The fear of nighttime lows, including mine

2 yrs old heh heh hehMe at three years old

I serve as a communications advisor to Dex4, maker of glucose products, lending them my patient perspective and expertise. 

I’ve also done a number of writing/editing projects for their “situational lows:” web and print information on “managing weight and lows,” “exercise and hypoglycemia,” “safe driving and hypoglycemia,” and “school days and hypoglycemia.” They’re all under the Learning Center tab on their web site. Great information about correcting and preventing low blood sugar.

So how uncanny that just as I’m working on another situational about nighttime lows, the most dreaded of all, my mother just spent the last two days thinking I had suffered one. Luckily as of this morning she knows I’m not sprawled in my bed or on the floor unconscious.

This is what happened. Every time my mother called my landline she got a busy signal because the last time I used the phone I had used my earpiece and hadn’t properly hung it up. So she’s hearing the phone ringing and ringing when, for me, the phone isn’t ringing at all. 

Meanwhile my cell phone was in my coat pocket for two days because I had put it there when I walked my husband down to the car service to take him to the airport Tuesday night (just in case they didn’t show) and completely forgot to take it out of my pocket. So, even though my mother left three messages on my cell phone, my phone battery was dead. Only last night did I look for my cell phone, realize it needed to be charged and it spent the night on the charger.

When I pulled my cell phone off the charger this morning I saw I had three messages, two from my mother and one from a friend she had called in Florida to see if she knew where I was or if something had happened to me. 

I called my mother right away and her relief was palpable. I can only imagine her picturing that little girl up there in the photo in dire trouble. I’m not usually a ditz. Actually, never. But I have had a horrendous body (and obviously mind) numbing cold/flu where all I can do is walk myself from my bed to read and doze to the couch to watch some TV and doze to the kitchen to make some soup, to barely lifting my ipad to check my emails. Work has largely gone by the wayside so I didn’t even realize the phone hadn’t been ringing.

All to say, I’m really sorry mom and we really do have to teach you how to email! But I also want to use this as an opportunity to remind you that if you suffer from lows and are alone, it’s wise to have a plan so you can get help if you need it, and assure your loved ones if you don’t. 

My current plan is if my mother experiences the same again, she is to call my brother and have him email me. Yes, even in a stupor, I check email. If I really had had a devastating low, (which in 39 years I never have thankfully) I have glucose tablets several places in the house. I also know I should have a better plan. All I can say is I’m working on it.

 

NYC’s “Pouring on the Pounds” campaign is a scare tactic

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I just wrote on the Huffington Postabout the public service announcement NYC’s Health Department is running. It ends tomorrow. 

If you live in the city you’ve probably seen it on TV or in a subway poster. The city is trying to get New Yorkers to give up their sugary sodas and other sugar-laced drinks in an attempt to cut down on obesity and diabetes. 

You’ll see in my article, while I don’t fault their intent, I take issue with their tactics – fear. And fear unfortunately does not motivate behavior change.

As if eliminating sweetened drinks isn’t enough, a week ago we learned we’re not even safe drinking diet soda. Diet soda has now been linked to greater risk of stroke and other heart problems. 

People who drank diet soda daily were 48% more likely to have a vascular event during the nine years in which they were followed. Well maybe we have a short reprieve as the study lead, Hannah Gardener, said the findings are “too preliminary to suggest any dietary advice.”

Then, two days ago on the morning news I heard the caramel coloring in sodas (and other products) may cause cancer. Get the picture? We’re all drinking at our own risk, unless you’re guzzling water. 

Of course my credo is to stick to foods mostly recognizable in nature and, as Michael Pollan says, ones where you can pronounce the ingredients. 

Leave your vote on HuffPost as to what you think.

This Valentine’s Day raise your love quotient!

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Funny, today as I did yesterday just by coincidence, I’m going to redirect you to my friend Amy Tenderich’s blog, DiabetesMine, for a guest post she asked me to write. It’s called“Loving Yourself with Diabetes.” 

It’s a bit about me, and likely a few things you don’t know. There’s also  a tip for upping your self-love quotient. I think you’ll like it. 

While we can’t guarantee anyone else is going to shower us with a dozen long stemmed red roses, we can and should, make sure we shower ourselves with love – especially on Valentine’s Day!

 

The Ricordi Chamber stars on “Grey’s Anatomy”!

I thought it was way cool while zoning out last night in front of prime time’s soap, “Grey’s Anatomy” to hear the words the “Ricordi chamber.” 

There I was wondering would Meredith make Mr. Dreamy realize she’s not just his wife but a fine resident? Would Calli ever stop screaming about her pregnancy? Would Mark ever tell Lexie about the baby he’s fathering? Then while Dr. Bailey’s performing surgery that Lexie’s twittering about in the background – much to the consternation of the Chief – someone either in the operating room or via twitter says they need a “Ricordi chamber.” The Chief looks doubtful but a twitterer (I think, because now I’m leaping over to my computer to send a fast email about this) helps them realize the viability and that there’s one down the road at a nearby hospital.

The Ricordi chamber is the creation of Dr. Camillo Ricordi, Scientific Director at the cure-focused premiere Diabetes Research Institute. The Ricordi chamber extracts healthy beta (insulin-producing) cells from a damaged pancreas that can be used for islet infusion. 

I interviewed Dr. Ricordi a few months ago on the Huffington Post, where he spoke about the Ricordi chamber, and much to his dismay having it named after him.

Dr. Ricordi: One night they were discarding a pancreas at the university. I waited for everybody to leave the lab and did a secret experiment. I thought if it doesn’t work I won’t tell anyone. If it does I’ll tell my boss. It worked, and within a few weeks all the engineers at the lab switched to this new procedure I’d tried. It’s based on a chamber.

Riva: This is the Ricordi Chamber?

Dr. Ricordi: Yes, but it was not my idea to call it that. I had called it the Automated Method.

Riva: How did you come up with it?

Dr. Ricordi: Truly, I was inspired watching a log burning in a fireplace. I thought you could develop a process where the pancreas would sit inside a chamber and like the slow, continuous process of disassembling a log in a fireplace, we could disassemble a pancreas and liberate insulin-producing islet cells. At the time it was very tough to break down an organ and get the islets out. They used a very heavy mechanical device not unlike a kitchen grinder. So my idea was quite radical. People laughed, “Sure you want to put a whole organ into a chamber and have things coming out the other side!” But it worked.

My leap to my computer was to email Tom Karlya, Vice President at DRI, whom I’d recently lunched with, and Lori Weintraub, VP of Marketing and Communications. Tom emailed right back, “Cool, huh?” Lori wrote back, “Thanks Riva!”

Yes, it’s ever so cool seeing a conversation about our lives coming out of the mouths of Dr. Bailey and her team over at Seattle Grace Hospital.