An oldie but goodie: Love and the Juvenile Diabetic



I wrote ‘Love and the Juvenile Diabetic’ in 2004 three years into my marriage. It was a good marriage, only kidding. It’s probably even better now it that’s possible, as you grow with someone over time. 

Last week we went up to Boston where I visited a number of diabetes organizations and companies. A friend at one of those companies wrote to me after I visited. 

“After seeing you and Bou I just re-read ‘Love and the Juvenile Diabetic’–new meaning this time around for me, as more life has happened since I last read it in undergrad school. Thank you for writing it.”

Since we’re always at different stages in our lives, and things affect us differently depending upon where we are, if you’ve read this before you might enjoy it a second time. If not, you might enjoy it for the first time.

“Sugar Babies” film shows wrenching rise in childhood diabetes, and needs funding

Even after living with type 1 diabetes 40 years, tears sprung to my eyes watching the trailer of “Sugar Babies”, the rising epidemic of diabetes in children. Two and three year olds taking shots and pricking their fingers constantly like 4-year old Caidence above. Ten year olds with type 2 diabetes largely because we’re larger. 

Jenny Mackenzie, mother of a type 1 daughter, and award-winning filmmaker is trying to raise $30,000 to finish her eye-opening film on childhood diabetes. Whether you contribute any money or not, a dollar or ten or nothing, watch, you will be moved. You will remember when children live this way what it really is to be, and to have, a child with diabetes.

Isn’t it time that people really understood what it’s like to live with diabetes, and we make it known?

From Roche to the T1D Exchange, from happy to hopeful


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I just got back from a whirlwind of diabetes activities. First there was the 4th annual Roche social media summit. Above my fellow diabetes influencers, hairnets and all, touring the Roche manufacturing plant. 

Thirty or so of us diabetes bloggers were hosted to one and a half days at Roche’s HQ in Indianapolis, paid hotel and meals. This meeting drew some new diabetes influencer   s than past meetings.

This year’s meeting was also different than the previous two years. Roche shared with us their new products in development, the launch of their new small, backlit, no-coding, meter Nano, and we heard from two inspirational speakers–one who lost both his legs, Josh Bleill and, type 1 Steven Richert, who is using rock climbing as an analogy for, “We can do whatever we believe we can do!” We were all moved.  

Truth is, I had no time to write about the meeting and do it justice but many of my DOC (Diabetes Online Community) fellow bloggers did, so you’ll find a few of their reports linked above, and lots of posts by googling ‘Roche’s social media summit 2012.’ AlsoDavid Edelman captured the two day meeting with all its activities. 

The day after I returned from Roche I headed up to Boston to meet with some major players in the diabetes arena: I met with Patients Like, a health data sharing information site. Patients with any of 1,000 conditions can post their health reports, lab tests and all and learn how a treatment is working for someone “just like them.” 

I met with Agamatrix, in Salem, New Hampshire, as part of my investigation on the Huffington Post about meter accuracy.

I met with the T1D Exchange (type 1 diabetes) and I’m inspired by what I heard, more inspired than I’ve been in decades.

I also met with Dr. Michael Dansinger, who writes on WebMD, is a consultant to TV’s hit, The Biggest Loser, and wrote the Foreword to my upcoming book,Diabetes Do’s & How-To’s. Michael is a passionate man working, as only a handful of others are, on reversing type 2 diabetes. And, one night I dined at the 4th oldest restaurant in Boston with Bryce Sady and Marta Murcia, my colleagues from QuantiaMD. They saw the value of educated patients sharing their wisdom and experience with HCPs through a segment called “Ask the Patient” which I’m a part of helping providers better understand how to help their diabetes patients with healthy behavior changes. Such great food, such exciting ideas flying across the table. 

I also, almost by accident, met a woman doing research in bariatric surgery for type 2 diabetes, and got to visit MIT’s media lab. While surrounded by absolutely amazing potential new inventions, I loved the fork that will shake when there’s too much food on it, and the spoon that will collapse when you’ve eaten enough. 😉

Stay tuned for more information on all these visits. All these meetings and learning I will write more about here and on the Huffington Post, but in summary, I was happy seeing my colleagues at the Roche meeting and I am hopeful for all I saw and heard in Boston. 

For now, as you might imagine, it’s time to put some food in the fridge, unpack, and investigate all this further to make the best sense for you of what’s spinning now in my head.