“It is true we tend to focus on fixing problems instead of seeing possibilities and what’s positive. You’ve made me see diabetes care and treatment in a different light – patients are now feeling happier during their visit and more eager to do something when they leave!” Linda Horsted Raimond, RN, CDE, MPH, Dept of Endocrinology, Bispebjerg Hospital, Copenhagen, Denmark
If you would like to discuss a customized workshop, presentation or consulting need, please contact me. I would be delighted to serve as a thinking partner and assist you.
Thank you for your article the Long Haulers Report….I so get it. I have had Type 1 for 38 years and have been feeling bit defeated as of late. Your article was a pleasant reminder that I have this. I too live my life between the lines of my Dexcom cgm. Thank you from a fellow Type 1 warrior.
You’re very welcome. Yes, it gets a bit too much now and then. Then I think about friends who’ve already passed away from cancer or the things in my life I’m grateful for. At some level, I’m pretty sure taking care of T1D has made me healthier than I would be otherwise.
Thank you for talking about your ups and downs and years with type 1 diabetes. I have had type 1 for 53 years now, since I was eleven years old. I have always said if not for diabetes I would be very healthy. My main problems have been lots of low blood sugar episodes and diabetic retinopathy first seen 40 years ago. My eyes have been ok until a few weeks ago, i noticed lots of floaters and distorted lines. i had to start eye injections. I was in the ETDRS study 40 years ago and got laser in my eyes . I thought I was doing so well keeping good control of my blood sugar, but you just never know what is going to happen even when you try so hard to take care of yourself. So nice to hear some one else talking about the challenges of having type 1 for 50 years or more. Thank you for what you all you do. Hope you stay well.
Do you know Janis, you are entitled to Joslin’s 50 year medal – https://www.huffpost.com/entry/get-a-medal-for-having-ty_b_5045502. And, like you, there are ups and downs, but somehow I credit diabetes, with all its ails for keeping me healthier than I might have been otherwise – https://www.healthline.com/diabetesmine/nearly-50-years-with-type-1-diabetes-a-long-haulers-report