I am so proud to call this woman, Christel Marchand Aprigliano my friend. Christel is an amazing advocate in the diabetes community. She created her coalition to get more favorable governmental policies for medicines and education passed in Washington for people with diabetes.
Now, with the spotlight and pressure on the obscenely high cost of insulin, on what appears to be outright greed on the part of insulin manufacturers and PBMs, pharmacy benefits managers – who are doing anything but benefitting patients – and with people skipping doses of insulin because they are uninsured or underinsured, Christel appeared on C-Span to discuss the issues. If you’re confused about what’s happening, it’s a good interview to watch.
While I’m sure Christel has a team of people behind her, don’t ever forget what one person can do, what you can do. Getting involved is as easy as hopping over to DPAC and adding your voice. Don’t fear, you’ll be guided through the process. While each one of us makes a difference, a chorus of voices is hard to ignore, as we’re seeing now in the fight to make insulin affordable.
2 thoughts on “Diabetes Patient Advocacy Coalition helping to make insulin affordable”
So interesting to read your story. Mine is similar. Diagnosed at 15 in the 60s. The name of the game at that time was ” frighten them to death with stories of complications and they may survive for a few years”. I left the hospital, looking forward to a life of blindness, amputations, kidney dialysis, childlessness, yada, yada,yada. We sterilized syringes, tested urine, waited a week for a single fasting and 2 hour PC blood test, etc. Being a defiant nature, I decided to carve out my own destiny. At the great trepidation of my very supportive parents, who wanted to keep me close to home, I decided to go overseas to go to physiotherapy school. I took my primitive tools and off I went. The principal of the school, a very forward thinking and supportive person, set me up with an endocrinologist at the teaching hospital and I completed the physiotherapy program unscathed. BTW, I paid nothing for treatment or supplies while I was a student in the UK. Having received a 4 year bursary from my provincial government I returned home and completed my 4 year return of service. I eventually moved on, got married, had 2 beautiful children, ( now have 2 beautiful grandchildren ), and settled in to a 37 year career primarily in stroke physiotherapy. I retired 8 years ago, and take frequent trips to visit my children and grandchildren. Managing my diabetes continues to be a priority and I still carefully follow a healthy lifestyle, balancing food intake, exercise, and medication. I am now 54 years since diagnosis, and probably could tack another couple of years on to that if today’s screening had been available at that time. I am grateful for all of the advances in medicine that have led to better control, and I continue to try new approaches as they become available.
Ruth you are an inspiration for people like me, as I have had it 47 years. Thank you for sharing your interesting story. Keep doing what you’re doing and enjoy your most bountiful life.