A1C Champions is looking for you


Are you successfully managing your diabetes? Are you interested in helping others do the same? Then you may be interested in being a peer-mentor as part of the A1C Champions group

There are 70 of us A1C Champions who live across the country and go across the country – or stay mainly in our local area – giving various presentations to help our fellow patients take better care of themselves, and their diabetes. That’s me above giving an A1C program. I’ve been doing it for 5 years and I find it enormously fulfilling work. 

VPR Communications, the group that trains us to do this work, is actively looking for more Champions. Here are the criteria: 

1) You must use insulin

2) Have an A1C less than 7%

3) Be at least 21 years old

4) Have a strong desire to help others

If interested, you can see more about the program on the A1C Champions web site. If you’re ready, or have any questions, please contact Becky Lodes at becky@vprpop.com or call 855-A1CHAMP (855-212-4267).

The power of the A1C Champion programs is that patients hear how to better manage their diabetes from a patient. Often they will have heard similar information from their health care providers, but when they hear it from you – and they know you live it – they hear it in a completely different way. 

The programs also allow you to share your story, your experiences, what it’s been like for you to live with diabetes and what makes you successful. 

You often become just the missing piece that moves someone to do something for their health that they’ve been putting off for years. 

I’ve given more than 50 programs, sometimes to ten people, sometimes to 200, and somehow I never tire of it. 

Volunteer abroad and empower children with diabetes

Screen Shot 2015-02-06 at 1.31.01 PMSummer program, apply now

Here’s an opportunity I wish I could take advantage of, but unfortunately I am too old, oh yes, and I don’t speak Spanish. But if you are a young person, at least sixteen years old, do speak Spanish and would love to have a life-changing experience empowering young people with diabetes, AYUDA (American Youth Understanding Diabetes Abroad) is for you.

AYUDA is looking for volunteers to help children with diabetes in Ecuador and the Dominican Republic. You don’t have to be in medicine and you don’t have to have or know about diabetes, you will be trained. 

The Dominican Republic program runs mid-June to early July. The Ecuador program runs mid-July to early August. Applications are being accepted now until February 1 and here’s everything you need to know. 

Have a safe and wonderful journey.

Peer-mentors help patients succeed with lifestyle changes

One piece of news that came out of the 71st scientific American Diabetes Association conference this past week in San Diego wasn’t scientific at all, but may be one of the most hopeful.

As reported in MedPageToday, unpaid, volunteer patients with diabetes took a 25-30 hour training program to help lead other patients to improve their lifestyle habits. And it was a roaring success. Blood glucose monitoring and physical activity increased, blood pressure and body mass index decreased, people ate more fruits and vegetables and stuck better to their medicine regimen.

“The most important resource in my practice is not my colleagues or other physicians, it is the patients we have in our center,” said Garry Tobin, MD, associate professor of medicine at Washington University. “We have patients who have had diabetes 50 years and that experience has been able to make them successful in controlling their disease, and this gives them the opportunity to go back out into the community and be successful in helping other people.”

Martin Abrahamson, MD, associate professor of medicine at the Joslin Clinic/Harvard Medical School, Boston said, “We are looking into doing similar programs among our patients.”

In the US where there are 26 million people with diabetes and 80 million with pre-diabetes and only 15,000 diabetes educators and less and less endocrinologists coming out of med school every year, education will have to come from another source – successful patients.

If you don’t know, there is a program called the A1C Champions, which I belong to. If you are a health care provider working with diabetes patients, check it out. It’s free and I can tell you from personal experience – the power of patients hearing the same thing you’ve told them, but from a patient living successfully with diabetes, becomes a source of motivation and inspiration, and often moves patients to action they wouldn’t otherwise take.

Diabetes patients learn something special from each other


March 2010 - 06

I’ve just returned from Scottsdale, Arizona. It was a lovely trip. I was attending the annual meeting of thepeer-mentor group I belong to. About 80 of us mentors and staff gathered under sunny skies to learn and bond. 


The programs we deliver as mentors provide some information and education but largely provide inspiration to fellow patients through our own personal stories of struggle and success. 


Patients learning from patients is a very different kind of education than patients learning from medical professionals. And it’s happening more and more. 


Patients go online, follow diabetes bloggers and volley what they know back and forth. Patients learning from patients is about a shared bond and experiences. 


This led me to reflect on an early presentation I gave in Buffalo, New York. It was the first time I was double billed with a diabetes educator. Her talk preceded mine, so I leaned back and listened. What I heard was forty-five minutes of numbers: A1Cs, blood pressures, weight and weight control, exercise, portion control, and carb-counting. 


While this is all important information, I also heard what she left out. That these goals are not easy. That we have to find a way to fit it all into our day. That a small step in the right direction is to be applauded. That we should pat ourselves on the back for every good effort.  


The purpose of my talk I quickly saw would be to say what she did not. To talk about how we hold diabetes in our lives and if necessary how holding it differently can help. Taking the stage I shared my own shock and fear upon diagnosis, my subsequent denial, and my early complications from that denial. The room quieted. I was they saw like them. I see the same landscape they see. I tramp through the same darkness trying to figure out half the time what’s going on. I look for solace when diabetes rains down upon me or drains me out. 


“When you’re so busy testing your blood sugar every day,” I said to my audience, “reading labels, counting carbs, and calculating everything, do you stop to think why you’re doing all this work? Isn’t it to see the grandkids grow up, start that second career, create the best vegetable garden in town, contribute something to the world, or have another million days with your spouse?” 


Heads nodded and people leaned forward. They turned from silent witnesses into curious involved participants. Someone had brought humanity back into the room. Someone had understood and acknowledged this piece of living with diabetes where their heart resides, along with their struggle. 


My predecessor, warm and personable though she was, didn’t have diabetes. That put her not just on the other side of the projector, but on the other side of our experience, where so many healthcare providers sit. 


We patients, however, are the experts of our diabetes and we are in the daily business of chronic illness. We have life adjustments to make, and since we have precious little help to make them, we are reaching out to each other. 


So here are my recommendations for a better tomorrow: 

• Learn all you can

• Appreciate what you hold dear

• Pace your efforts

• Forgive your mistakes

• Keep the vision of your ‘best life’ ever-present

• Spend more time doing what you love. While we’re living with diabetes let’s

   not short-change the “living” part. 

• Consider yourself “more than” not “less than.”  We’re all doing a second 



After the program people crowded around to thank me, and they were smiling. Well, if anyone can leave a diabetes meeting with a smile then I figure I’ve done something right.



Sharing our experiences makes diabetes easier

Screen Shot 2015-02-07 at 9.48.26 PMPeer-mentor, Bob Kolenkow


Eight years ago, when I first started thinking of myself as someone who works in diabetes, I attended aTaking Control of Your Diabetes(TCOYD) event in San Diego. I was covering it for Kelly Close of Close Concerns.


Wandering around the exhibition hall I started chatting with a gentleman who was eager to answer my questions. He told me he was a peer- mentor and that he speaks to patients around the country helping them manage their diabetes, in part by sharing his story. 


He neglected to tell me he was a former physics professor at M.I.T. Thank goodness I didn’t know, I might have been intimidated. But that’s not Robert Kolenkow’s way to intimidate anyone. 


Because of Bob, I’ve been a peer-mentor for the past three years and it’s one of the most rewarding things I do.


I told Bob about a year ago that he’s one of my mentors because he led me to this work, and he welled up with tears. You can meet Bob in his recent article in The New York Times. He epitomizes the saying that “a life examined is a life worth living.”