Need to ‘stay between the lines’ even on World Diabetes Day

As I’ve said, likely every year, it’s nice to have a day dedicated to you, but it would be nicer if we didn’t need it.

In all my years with type 1 diabetes, 53 now, this is one of the pieces I’m most proud of writing. It was published while I was writing for the Huffington Post for seven years, “Type 1 Diabetes Finally Explained.”

It touched a lot of people and helped them explain to family and friends what it’s really like to live with this condition. Doesn’t matter that it was written eight years ago, a classic is a classic.

“Adherence to treatment” is demeaning to people with diabetes

I’m going to ask you to take just a few minutes to fill out a short, simple survey if you agree with this headline.

The World Heart Federation (WHF) is portraying the patient/HCP relationship as “adherence to treatment.” In the diabetes community there’s been a movement for some years now, #language matters, to rid us of demeaning language, such as “adherence.” Adherence implies judgment, stigma, lack of context and that we bow down before the mighty health professional rather than engage in a partnership. The International Diabetes Federation is trying to persuade the WHF to drop the term, but they need our voices.

Please take just a few minutes to fill out this simple, short survey and let the WHF know we object to labeling us as adherent or non adherent, a clinical term by the way. https://lnkd.in/er5ndXFX

Note: One question asks if you are YLD (a young leader in diabetes) or BCV (a Blue Circle Voice member). These are IDF groups. If you can, just skip the question. If you can’t, just tick BC

I thank you.