As I posted this title I thought about the many meanings of "breakthrough."
"Breakthrough" is the name of the book released last year that follows the discovery of insulin in 1922 by Dr. Charles Best in Toronto and one of its first recipients, Elizabeth Hughes, an 11 year old girl with type 1 diabetes.
"Breakthrough: The Dramatic Story of the Discovery of Insulin" is also the name of the exhibit, based on the book, that just closed at the New York Historical Society.
"Breakthrough," of course as the book's title, represents a medical breakthrough - the discovery of insulin. Now one could have diabetes and live. But now I find the word "breakthrough" bittersweet. As "breakthrough" is the dream that lives in the heart of all of us with diabetes still waiting for the big one almost 90 years later - a cure.
I attended the exhibit a few weeks ago and particularly enjoyed seeing the antiquated pumps, meters and syringes patients had to live with only a few decades ago. I am eternally grateful that just about the time I got diabetes, 39 years ago next month, disposable syringes were already on the scene.
Here are a few snaps from the exhibit.
Apart from seeing what's pictured here, however, the best way to soak up the story is to read the book.
I don't eat "diabetic" foods. I don't eat anything that says, "made for diabetics" and I hardly ever eat sugar-free foods. If I want something like chocolate or jam I eat a small amount of the real thing. I'm more concerned what chemicals they put in when they take the sugar out. Besides, many foods "made for diabetics" have as much carbohydrate as the real thing.
I've even managed to reduce my dependence on artificial sweeteners. It's been a long slog. But now, a little half & half in my coffee or tea makes it mouth-satisfying enough that I don't want, or even like, the sweetness anymore that a Splenda or Equal gives it. And oatmeal and cottage cheese without sweetening taste just as good, as my sweet-tooth has waned.
But there are two foods you might say are made for diabetics that are always in my pantry:
1) Dreamfields. This pasta is designed in such a way that the net carbs are 5 grams per serving compared to typical pastas that come in at 38 or 40 net carbs/serving. Dreamfields tastes like regular pasta but its composition allows for only 5 grams to be digestible, so the bulk of carbohydrates have no impact.
I gave up pasta for decades because of how much it raised my blood sugar. Now I'm back to eating it at home with this product. For a serving I need one-quarter the amount of insulin as I do for regular pasta. Dreamfields comes in spaghetti, angel hair, linguine, penne, elbows, rotini and lasagna.
I keep telling the only supermarket in my neighborhood that carries it, Key Foods, to advertise it as healthy for diabetics, but it goes right over their head. So I'm telling you. Also, there's a $1.00 coupon on their web site and a Store Locator.
2) Extend Snacks. I found Extend Bars, one of the company's original products, years ago and they've been in my house ever since. If when I'm going to sleep, I've had enough wine with dinner that I know my blood sugar will drop significantly through the night, I eat one-third of this bar and I wake up fine. (Amount may vary for you). Extend Snacks now include crisps and shakes and all their products work on the same principle: they contain cornstarch which breaks down very slowly and helps maintain level blood sugar for 7 to 9 hours.
Extend Snacks were created by pediatric endocrinologist Francine Kaufman after she noticed cornstarch's ability to help patients with severe lows. If that sounds a little too medical, the bars taste really good. Peanut Butter Chocolate Delight is the most popular and my favorite.
Extend Snacks are available at Walgreens and other chain stores. Or you can order online as I do because they're not in the NY area, yet. In fact just recently I've been part of a letter writing campaign to try and bring them to New York City chain drug store CVS and Walmart.
By the way, neither Dreamfields nor Extend Snacks have asked me to write this. I just like to share what works for me in the hopes it may work for you.
Isn’t it time you gave yourself a pat on the back for all you do, more learning in a fun setting, and the joy of mixing with your 'diabetes sisters?'
That’s exactly what’s waiting for you at the 2nd annual DiabetesSister’s (run by the powerful, gentle Brandy Barnes) “Weekend for Women”.
Friday evening April 29 to Sunday afternoon 1 PM, the conference takes place in Raleigh, North Carolina, a little hotbed of diabetes activity.
The conference is open to gals-only (sorry guys) type 1 and type 2s and features sessions & workshops that deal with issues women care about: body image, pregnancy, spirit, strength, menopause, monitoring, cooking and moving, relationships, sex and self-acceptance. You'll find quite an age range and people from around the country.
Gloria Loring, steamy song stylist from the ‘70’s, now mother of a child with diabetes and advocate for the Juvenile Diabetes Research Foundation and Ann Albright, a Director at Center for Disease Control, are key speakers.
I'll be conducting a “flourishing with diabetes” session Saturday night after our 'Celebration of Strength' dinner and many other experts are on board.
So come for a run, some fun and what most of us enjoy most of all, mingling with those who walk in our heels.
Here’s the agenda. $100 covers the entire cost of the conference including meals. Registration is open to the first 200 registrants, but don't delay. Last year registration closed six weeks early, so make your booking now. Then come up to me at the event and say hello.
If you haven't heard there's some new news about reducing those after breakfast spikes in your blood sugar if you have type 2 diabetes.
Based on research that showed a reduction in blood sugar after the second meal of the day (lunch for most of us), it was hypothesized that high blood sugar after breakfast could also be reduced if there were a pre-breakfast snack, in a sense making breakfast the second meal of the day.
Researchers studied 10 men and women who controlled their diabetes with diet or diet and metformin and gave them a high-protein, low-carb snack before breakfast. Measuring blood sugars the results showed a lower rise in plasma glucose (blood sugar) after breakfast.
Researchers say they are still searching for the perfect pre-breakfast snack and the perfect time lapse in-between the snack and breakfast. Plus further studies need to be done to see whether a high-protein, low-carb snack before breakfast improves A1cs, but for now it seems worth a try. Why not conduct your own experiment?
For more details check out "How to Reduce After Breakfast Blood Sugars 40%" in DiabetesInControl.com.
I reported here that DiabetesInControl.com ran a story that genes are not responsible for type 2 diabetes. The findings of a study revealed little evidence that inherited genes cause common diseases like diabetes, heart disease, autism, cancer, depression and dementia. As you might imagine that has created a stir and some sharp criticism.
To share both sides of this controversial issue, here's one expert's rebuttal to that study from Constantin Polychronakos, M.D., F.R.C.P.C., Professor, Departments of Paediatrics and Human Genetics, Director, Division of Endocrinology, McGill University Health Centre. Now that's a lot of titles!
I had the pleasure of being interviewed on a fantastic radio show coming out of Portland, Oregon by two deeply caring health professionals.
Heather Clute, counselor, wellness coach, and a type 1 herself, and MD Jeff Horacek, were the hosts who teased out my story (not that it takes much teasing) of my 38 year journey with diabetes and what I've learned along the way to stay emotionally strong; rising to the challenge of managing diabetes and doing my best every day - well, most days ;-) O.K., we did discuss whether diabetes is a disease or a condition, and I said it "depends on the day."
I love the title of this radio show from Integrated Diabetes Care - 'Transforming Diabetes.' It's what I've learned to do after many years of living with it; use it as a catalyst to stay healthy, appreciate what I have and help others, which gives me profound joy and satisfaction.
My talk will give you some tools to stay strong and a lift. We'll be doing a Part II specific to tools for "Flourishing with Diabetes," living in that space where you make diabetes "a part of" your life not the "whole of it" and look forward, not backward, to creating your best life. I'll be sure to post that when it's done.
After the podcast, check out the Show Archive too. You'll find leaders in the field like Susan Guzman from Behavioral Diabetes Institute and topics as diverse as overcoming depression, Robert Keegan's work on investigating assumptions, reversing type 2 diabetes, mindfulness meditation, holiday eating and more.
Last week on "Good Morning America" actress and former talk show host, Ricki Lake, said juvenile diabetes was preventable. She's since apologized. "This was a mistake on my part and in no way was meant to offend anyone dealing with the very serious disease of juvenile diabetes."
Lake was speaking about her new book and AllStride program to combat childhood obesity when she made her mistake. "I commented that juvenile diabetes was preventable when in fact it is type 2 diabetes. This was a mistake on my part and in no way was meant to offend anyone dealing with the very serious disease of juvenile diabetes."
I'm not offended. In fact, I'm a little delighted. Her mistake only confirms the public's confusion about type 1 and type 2 diabetes. Even Lake's interviewer smart guy, George Stephanopalous, didn't catch her mistake. Now that is one thing I am sorry about. That the error was not snuffed out in its tracks and may deepen the confusion for those who didn't catch Lake's apology.
You'd think Lake, who's advocating stemming the tide of childhood obesity - linked to the rise of type 2 diabetes in children - would know better than to confuse juvenile diabetes (type 1) with type 2 diabetes (adult onset diabetes). Type 1 diabetes is an auto-immune condition, not related to weight or a sedentary lifestyle and it's not preventable or reversible.
Lake probably does know better, and it was probably a glitch of the mind, just a slip of the tongue. Then again, she actually made two mistakes. The name "juvenile diabetes" was changed to "type 1 diabetes" in 1997.
Then again you'd think Dr. Oz, "America's doctor," would know better. When he appeared last year on Oprah Winfrey's program on diabetes he actually said, "Type 1 is also called juvenile diabetes and you are born with it." Oh, my, born with it. That's a pretty HUGE mistake! Just to clarify, while type 1 diabetes occurs more often in children than adults, you are not born with it.
Do I blame Lake for her blunders? Not at all. These are the type of mistakes the general public make all the time. Most people don't even know there's such a thing as type 1 diabetes as we are so overshadowed by all the media and pharma attention on type 2 diabetes. I am less understanding however how Dr. Oz could get it so wrong.
Maybe you're thinking what's the big deal? The big deal is multi-pronged. I believe the lack of recognition of type 1 diabetes and understanding its daily life-threatening nature, impedes urgent and necessary funding toward a cure.
The fact that type 1s are judged harshly by the public for "causing their condition" is just plain hurtful, just as much as to type 2s. The fact that we are invisible against the large canvas of type 2 diabetes is often painful. The fact that the public is so misinformed and uninformed may actually hinder life-saving treatment when a type 1 needs it.
So let's go back to that "life-threatening" part: As a type 1 every day, every few hours, I have to test my blood sugar and then often do something to return it to a near-to-normal, safe zone. If my blood sugar's too low I can fall into a coma and die. If my blood sugar's too high my body can produce toxic acid in my blood stream called ketoacidosis, and over time I will likely succumb to a premature heart attack, blindness, amputation, host of nerve conditions and have a life span 15 years shorter than if I didn't have type 1 diabetes.
If you're interested, you'll find a side by side comparison of type 1 and type 2 diabetes in"The type 1 versus Type 2 Diabetes War."
One thing I noticed in the diabetes community regards Lake's mistake was upset from parents of children with type 1 diabetes. If you want a little window into living with type 1 diabetes ask any parent who has a child with it. A mother or father who has to hold their five year old down every day to give her several injections a day. Who has to poke their child's hurting, tiny little fingers all through the day to get a read and regulate her blood sugar. Who has to force their child to eat when she doesn't want to and stop her from eating when she does. Make her move when she doesn't want to and stop her from moving when she does.
Most parents go to sleep fearful every night that their child will not wake up due to a dangerous blood sugar drop overnight that can not always be predicted or prevented.
I have asked these parents what it's like. I also know that children with type 1 diabetes grow up and become the person sitting next to you, sitting unseen with her invisible life-threatening disease.
I think type 1 diabetes needs the recognition that type 2 diabetes has gained. I think the roughly 3 million people with type 1 diabetes, living in the shadow of the almost 25 million with type 2 diabetes, deserve to be acknowledged for what they live with and what they do to keep living, every day. For their courage, for their hope, for their tenacity.
So Ricki, while some say your mistake has added to the myths of diabetes, I thank you for what it has also done - brought more media attention to type 1 diabetes than we've had in a long time.
I just thought as I emptied another two bags of syringes into my kitchen drawer that if you don't already have one, you ought to have a designated diabetes drawer. A drawer or a cupboard devoted just to diabetes supplies.
Mine is in my kitchen, second drawer down, on the right. When I began interviewing people with diabetes my very first interview was with a young couple who had a three year old with diabetes. She showed me around their apartment and pointed out the supply closet where they stored only and all their son's diabetes supplies. "It makes it much easier to have everything in one place," she told me, "and to keep track of what we're running out of and need to reorder."
I keep my boxes of supplies in my kitchen pantry closet, top shelf and then move things into my diabetes drawer to have a current stash to draw from.
You can see what's in my diabetes drawer right now: syringes, glucose tablets and sweet tarts, lancets, vitamins and my Extend Bar. Oh, yeah, somehow take out menus seem to nestle in there too.
It's a good project, if you don't already have a diabetes drawer to create one. Trust me, it makes it all the easier to reach in one place to get the daily stuff you need.
What's available at major U.S. airports. High carb bagels...
Sweet and fatty donuts
Pretzels and cookies
Fat laden pizza and calzones
New Year's resolutions be damned, we'll get healthy when health is the easy choice.
Yet again this morning I heard on the CBS Morning Show a segment from medical correspondent, Dr. Jennier Ashton, listing how to stay younger. You know how, you've heard these rules a zillion times. Don't smoke. Eat healthy foods in smaller portions. Exercise, both aerobic and weight training. Wear sunscreen. Get 7-9 hours sleep. Get 1,200 units of calcium for bone loss.
OK, I listened to hear if anything was new. It wasn't. Then I went to do my laundry and while shoving shirts in the washer thought, how am I supposed to follow these guidelines given my day? How are you supposed to follow these guidelines with your busy life? Is your boss making time for you to go to the gym? Is your cafeteria or ubiquitous corner deli, fast food place, family chain restaurant or airport kiosks offering more healthy choices than unhealthy ones? For the same price?
Can you enjoy peaceful slumber in these recessionary times? Can you sleep 8 hours if you've got little ones or a job you're trying to hold onto? Can you even find 30 minutes to get outside to wear your sunscreen?
As I'm typing the same show is now doing a segment on "How to jumpstart your oops, missed it, either weight loss or exercise." As if I had room in my tiny apartment for a treadmill. Or even the space to lie on the floor with dumbbells as they're now showing.
It amazes me, again and again, that we preach what we should be doing out of one side of our mouths and do nothing to create the infrastructure to support people doing it. Food manufacturers have powerful lobbies to keep making artificial food-like substances. The government continues to fund farmer's over production of corn so high fructose corn syrup is in most things you eat, including the burger you can buy for a buck. No wonder people are chowing down at McDonalds and not on apples that also cost nearly a buck. So tell me, talking heads, what do you really expect people to do?
Or is it because a big corporation owns the TV station, the newspaper, the magazines and profit rules what people say but not do.
Finland's capital city, Helsinki, has a mysterious high population of type 1 diabetes - more people in Helsinki have type 1 than anywhere else - and they now have a growing epidemic of type 2s. What did Helsinki do? They redesigned the city to create more parks for free outdoor activity, they created more bike lanes and more walking paths. What are people doing? Playing outside (hopefully with their sunscreen on), biking and walking on a regular basis.
Without the infrastructure to make it easy to make healthy choices, it takes enormous commitment and effort to stay healthy in America. It takes learning about the health quotient of different foods, being able to afford them and packing your own wherever you go. It takes waking up early or sacrificing time with your family to get those 30 minutes of exercise.
I'm not saying it can't be done. I do it. It's important to me so I've worked it into my life as best I can. Don't ask me how frustrated I am when I can't find something healthy to eat at an airport. Thus the photos. I'm just saying when are we going to admit that we tell people what to do to stay healthy and do next to nothing to make it easy for us to do it.
Oh wait, gotta go, NBC's weight loss guru, Joy Bauer, is about to share her Slimdown program.
Happy New Year, Hurrrrrrrrrrrmmmmmmmmpppppppphhhhhhhhhh!!!!!!!!!!!!!!
I'm noticing a trend already in 2011. That's how much more available diabetes education is and much of it is right here online. In my last post, I told you about Gary Scheiner's new online type 1 universityfor insulin users.
Sheri Colberg, exercise physiologist, PhD, founder of Lifelong Exercise Institute and a type 1 patient herself, opens the doors of Lifelong Exercise Institute for a new 52-week "Fit Brain, Fit Body!"diabetes management email program based on her book, The 7 Step Diabetes Fitness Plan.
We all know how difficult it is to get all that exercise we keep hearing we should get. But having weekly info, support and guidance may be just the thing to get you off the couch.
Each week through Sheri's program you'll receive an email answering fitness, exercise, nutrition and overall health questions. The 52 week program costs $25.
Some key topics include:
· Weekly diabetes management tips from experts
· No dieting--ever!
· Easy-to-implement nutrition tips
· Daily physical movement that doesn't require sweating
· Planned exercise that is short, sweet, and habit-forming
· Effortless and permanent weight loss over 52 weeks
· Exercise tips for your brain that will make you smarter
· Health tips that will save (and prolong) your life
· The nudge you need to make permanent lifestyle changes
· Other key advice that will energize your body and your life
· E-mail access to experts for your diabetes, fitness, and health questions
The program includes specific plans for beginners (or returning exercisers) and current exercisers. This may be what finally allows you to succeed in your plan for better health--and for less than 50 cents a week for a full year. That's about the cost of one Starbuck's cappuccino a week.
You can also choose 26 weeks of "Fit Brain, Fit Body!" or start with just 13 weeks of this program for $10.
The shorter programs offer the same diabetes fitness and lifestyle programs weekly via e-mail, with an option to sign up for more of the full-year program later on. Also, you can begin any program anytime during the year.
You can preview and sign up for any program at Lifelong Exercise Institute.
Just last month the American Diabetes Association issued new exercise guidelines: Get at least 150 minutes a week of moderate-to-vigorous aerobic exercise spread out at least three days during the week, with no more than two consecutive days between aerobic activity.
“Most people with type 2 diabetes do not have sufficient aerobic capacity to undertake sustained vigorous activity three times a week," says Sheri, "and they may have orthopedic or other health limitations.” So if you fall into that category, give "Fit Brain, Fit Body!" a look. The programs also support getting activity with a mobility limitation.
A treadmill might be just the thing to put in that lonely corner where you took down the Christmas tree ;-)